Coping with anything can be difficult because you need to learn how to deal with it. As for myself, accepting KLS was difficult because I was embarrassed, therefore I wouldn’t tell anyone. After I shared my story, I’ve accepted it a lot more. I find that the brain is such a fascinating organ and it is capable of doing so much more than we can explain. I was taught that you should never be embarrassed of yourself. You are who you are for a reason and you can accomplish so many incredible things.
Many people who have a rare diagnosis often feel alone. My advice to anyone who feels alone is to find a hobby. Do what you love and don’t let anyone stop you. Do something that makes you truly happy and stick with it.
Some hobbies may include:
- watching a TV series or movies
- listening to music
- play a musical instrument
- get into sports or recreational activity
- express yourself in any positive way you can
Not only finding a hobby helps, but finding yourself a good group of friends helps even more. Find people who will be there for you when times get tough, people who will make you laugh and be there when you cry. I know that I have found myself amazing friends who motivate and inspire me so much, who are always there for me and make me so incredibly happy.